Intellectual and Developmental Disabilities (IDD)
Intellectual and Developmental Disabilities (IDD)
Developmental Disabilities Community Services (formerly Developmental Disabilities Administration)
(wa.gov)’s website has information on DDCS services, eligibility, training, contacts and more.
Parent to Parent
Parent to Parent (P2P) is part of the national network of Parent-to-Parent USA. We offer hands on support, training, and technical assistance and education to parents and caregivers of individuals with disabilities and/or special health care needs. The purpose of parent-to-parent program is to provide support, guidance, and mentorship to parents who are navigating specific challenges or circumstances related to their children’s health, disabilities, or special needs. The goal is to empower and assist parents in better understanding and addressing the unique needs of their children, fostering a sense of camaraderie, and reducing feelings of isolation often associated with parenting challenges.
ECHO IDD
University of Washington in partnership with Seattle Children’s hospital provides training, resources, education, and case staffing for professionals serving children with intellectual and/or developmental disabilities.
PAVE
PAVE offers a wide variety of family resources including peer support, education, resources, and navigation for learning, family, health, wellness, and more.
Autism Spectrum Disorder Resources
Seattle Children’s
- Seattle Children’s has a wealth of resources including how to get early intervention services, what to do while waiting for an autism evaluation, getting started after an autism diagnosis, and supporting organizations and classes.
- Seattle Children’s also shared daily living information living with Autism from challenging behaviors, bullying, mental and behavioral health to sexuality, sibling support, travel, and toileting.”
- Seattle Children’s also shares information for transitioning to adulthood and adult services with autism for topics including higher education, housing, healthcare, and employment, and autistic self-advocacy.
- The Autism Blog from Seattle Children’s Autism Center
- Seattle Children’s Autism Center YouTube channel
The Washington Autism Alliance
Helps children and adults with ASD get access to healthcare, education, and legal services (legal services in partnership with Northwest Justice Project).
The Arc of Washington State
Advocates for the rights of citizens with developmental disabilities. They also offer a parent-to-parent program that offers support and information for families of children with developmental disabilities.
Phone: (360) 357-5596 or (888) 754-8798
Autism Speaks
Has an expansive hub of resources for individuals and families with Autism. Autism Speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow. Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families. They do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
Ben’s Fund- Families for Effective Autism Treatment (FEAT)
Ben’s Fund offers grants for therapy, equipment, and other services specifically for individuals with Autism.
Phone: (425) 223-5126
Email: info@bensfund.org
Washington Autism Alliance & Advocacy (WAAA)
WAAA helps families navigate the insurance system for services including speech therapy, occupational therapy, and more. They also have many resources available online.
Phone: (425) 894-7231 ext. 103
Email: INP@washingtonautismadvocacy.org
Jessica Kingsley Publisher
Has a large selection of books on Neurodiversity for parents, providers, and patients.
jkp.com
Open Doors for Multicultural Families
Open Doors offers one-on-one, individualized support for a variety of issues and challenges facing families of loved ones with developmental or intellectual disabilities including special education consultations, assistance applying for benefits, access to therapies, among others. Families receive assistance in their most comfortable, when possible, from a bilingual bi-cultural Family Support Specialist or through an interpreter. Also offered are parent support groups to come together to learn and share in their most comfortable language with other parents who share their culture and experiences.
Phone: (253) 216-4479
Email: info@multiculturalfamilies.org
WA Center of Excellence Providers to diagnose Autism
Office of Developmental Disabilities Ombuds.
The DD Ombuds collects and investigates complaints brought by those who use developmental disabilities services. The DD Ombuds resolves complaints at the lowest possible level. The DD Ombuds protects choice, autonomy and makes sure people with disabilities have access to advocacy. The DD Ombuds promotes the well-being of people who receive state services, and all DD Ombuds services are resident-directed and person-centered. The DD Ombuds also monitors service procedures, reviews service facilities, provides information on rights, writes reports, and recommends changes to Washington State Government. The Office of DD Ombuds is not a part of the Developmental Disabilities Administration (DDA), but if you are having problems or with DD services, or do not believe they are providing adequate resources, you may contact the office of DD Ombuds. They have offices in Seattle, Spokane and Olympia.
To file a complaint, you can either call 1 (833) 727-8900
Or visit https://ddombuds.org/ and click on “File a Complaint” at the top of the webpage.
Autism Spectrum Disorder Apps (shared by intelligent.com)
Habitica is a task manager to “gamify your life” turning daily tasks and to-dos into quests to level up your avatar to empower reaching daily goals.
MindMeister organizes and prioritizes all your thoughts into an easy-to-see mind map for those that prefer visualizing their plans, processes, and ideas.
National Council on Severe Autism provides information, advocacy, and support for the Profound Autism population to address the needs of this population and support overwhelmed parents/ families.
App-assisted coping strategies
- Anxiety:
- Depression:
- Eating Disorders:
- Recovery Record for those recovering from eating disorders that can also be linked up to a treatment team through the companion clinician app.
- Rise Up + Recover for recording behaviors, emotions, and health for those recovering from eating disorders.
- Bipolar:
- EMoods tracks symptoms relating to bipolar disorder to identify patterns and triggers.
- Medication Tracking:
- Medisafe helps manage complex prescriptions with reminders for each medication taken with warnings of negative drug interactions for multiple prescriptions.
- Promoting Mental Wellbeing and Healthy Relationships with Social Media webinar recording presented by The College of Behavioral Health Leadership. This webinar reviews the risks and benefits of social media, it’s impact on youth wellbeing, and the implications concerning the current narrative.